Family Support
The Greenwood Genetic Center strives to help patients and their families connect with available resources and other families. We support several local and national parent organizations in numerous ways including coordinating meetings, providing meeting space, speaking, facilitating, sitting on boards, etc. Although there is no cure for most genetic conditions, our goal is to provide families with the education, knowledge, resources, and connections they need to enhance the quality of life for both the patient and the family as a whole.
For additional information on any of our family support services please This email address is being protected from spambots. You need JavaScript enabled to view it. .
Family Resources
General Support Organizations
- Family Connection of South Carolina
- Family Village
- Genetic Alliance
- Genetic Home Reference
- Moms in Common
- National Organization for Rare Diseases
- Newborn Screening (Screening, Technology and Research in Genetics)
- South Carolina BabyNet Central Directory
Support Organizations for Specific Diagnoses
- 22q and You Center (22q11 deletion)
- 22q13 Deletion Syndrome Foundation (Phelan-McDermid syndrome)
- Angelman Syndrome Foundation
- Autism
- Children’s Tumor Foundation (formerly National Neurofibromatosis Foundation)
- Chromosome Disorder Outreach
- Down Syndrome
- Epilepsy - SAFE (SC Advocates for Epilepsy)
- Fragile X Syndrome - National Fragile X Foundation
- Little People of America
- Microcephaly - Foundation for Children with Microcephaly
- Muscular Dystrophy
- Prader-Willi Syndrome Association
- Rett Syndrome - International Rett Syndrome Association
- Smith Magenis Syndrome
- Unique Rare Chromosome Support Group
- Velocardiofacial Syndrome Educational Foundation
- Williams syndrome - National Williams Syndrome Foundation
Upcoming Activities/Meetings
- The SC Cancer Alliance will hold their summer meeting at GGC's Greenwood campus on Friday, June 15, 2012. The topic is 'It's All Relative: The Importance of Family History on Your Cancer Risk.' Click here for information and registration.
- GGC will be hosting the International Conference on Glycoprotein Storage Disorders to include a scientific meeting, family meeting and natural history clinics in Charleston, SC on July 27-30, 2012. See news release for more information.
- The Phelan-McDermid Syndrome Foundation 2012 Conference will be held on June 25-28, 2012 in Orlando.
- Contact This email address is being protected from spambots. You need JavaScript enabled to view it. for additional details on upcoming events.
2012 Summer Camp Opportunities
This listing is for informational purposes only. Please contact the camp directly for additional information
- Therapeutic Riding Summer Olympic Equestrian Camp - Greenwood, SC
- Camp Sertoma- Clemson, SC
- Communication Camp - Charleston, SC
