Family Support
The Greenwood Genetic Center strives to help patients and their families connect with available resources and other families. We support several local and national parent organizations in numerous ways including coordinating meetings, providing meeting space, speaking, facilitating, sitting on boards, etc. Although there is no cure for most genetic conditions, our goal is to provide families with the education, knowledge, resources, and connections they need to enhance the quality of life for both the patient and the family as a whole.
For additional information on any of our family support services please contact Rachel Leffert.
Family Resources
General Support Organizations
- Family Connection of South Carolina
- Family Village
- Genetic Alliance
- Genetic Home Reference
- Moms in Common
- National Organization for Rare Diseases
- Newborn Screening (Screening, Technology and Research in Genetics)
- South Carolina BabyNet Central Directory
Support Organizations for Specific Diagnoses
- 22q and You Center (22q11 deletion)
- 22q13 Deletion Syndrome Foundation (Phelan-McDermid syndrome)
- Angelman Syndrome Foundation
- Autism
- Children’s Tumor Foundation (formerly National Neurofibromatosis Foundation)
- Chromosome Disorder Outreach
- Down Syndrome
- Epilepsy - SAFE (SC Advocates for Epilepsy)
- Fragile X Syndrome - National Fragile X Foundation
- The Global Foundation for Peroxisomal Disorders
- Little People of America
- Microcephaly - Foundation for Children with Microcephaly
- Muscular Dystrophy
- Prader-Willi Syndrome Association
- Rett Syndrome - International Rett Syndrome Association
- Smith Magenis Syndrome
- Unique Rare Chromosome Support Group
- Velocardiofacial Syndrome Educational Foundation
- Williams syndrome - National Williams Syndrome Foundation
Upcoming Activities/Meetings
Congratulations to Eastside High School for raising $150,020.13 during their annual Spirit Week for FAST (Foundation for Angelman Syndrome Therapeutics). GGC was a proud sponsor of their efforts!
Contact This email address is being protected from spambots. You need JavaScript enabled to view it. for information regarding any family support events or meetings.