Family Support Groups
Support groups formed with the help of the GGC by families with children
affected with mental or physical disabilities. Meetings are held to
allow families to share information and ideas and to learn more about their
child's disorder. For more information, please contact Gail Anderson
Stapleton at (864) 250-7944.
Upcoming Support Group Meetings: Contact Gail Stapleton for more
information (864-250-7944)
Angelman Syndrome - Meetings held at rotating sites.
Deletion 22q13 - Started by Dr. Katy Phelan, a cytogeneticist
formerly of the GGC. Quarterly newsletters are sent to members (no fee
to join) which includes a membership directory. The Sixth International Meeting is being planned for July 2008 in Greenville, South
Carolina.
Recent publication: Phelan MC, Rogers RC, Saul RA, et al.
Research Review: 22q13 Deletion Syndrome. American Journal of Medical
Genetics 101:91-99, 2001. Summarizes the clinical and developmental
data on 37 individuals with deletion 22q13 and compares the features with 24
individuals previously reported in the literature.
Down Syndrome Family Alliance of Greenville
- Officially
established in 1996, membership of this non-profit organization has grown to
more than 80 families and professionals. Visit the Down Syndrome Family
Alliance of Greenville website at
www.dsfag.org
Fragile X Syndrome - The Carolinas Fragile X Support Group (CFXSG)
was founded in 1996 by Paul and Sandy Shewmaker and is an official resource
center for the National Fragile X Foundation. Meetings are held at rotating
sites. Additional information on Fragile X Syndrome may be found at these websites:
Muscular Dystrophy - The Muscular Dystrophy Association Support
Group meetings are held quarterly at St. Francis Women's Hospital. Contact the MDA of Greenville at (864) 241-7980.
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