Meet the Shenal Family

Meet the Shenal Family

Our daughter, Ryleigh, was diagnosed with a rare chromosomal deletion shortly after she was born in 2010. Since we received her diagnosis, the Greenwood Genetic Center has become part of our family. They made certain that we did not feel alone, and they continue to provide ongoing, compassionate care for our child. The impact they have had on our family and others across the globe everyday is immeasurable. We can't imagine walking this journey without their guidance and support.

Because of the amazing things they have done for us, and the impact their compassion has had on our family, we started Race the Helix. It is a 5K race and 1 mile run/walk to support their mission - to do our part to make their vision of providing treatments and cures for families impacted by genetic conditions a reality. Through Race the Helix, we hope to raise awareness for GGC, rare genetic disorders and families on the same path as ours.

- Stephen and Jodi Shenal, pictured above with their children, Tyler and Ryleigh

Learn more about this amazing family and Race the Helix here.

Meet Jeremiah

Meet Jeremiah

Play peek-a-boo with 9 month-old Jeremiah Licorish of Florence, and you'll be rewarded with a huge grin that lights up both his and his mother's faces. But this family has been through the unthinkable over the past few months, with very few reasons to smile. At first things were going well. Jeremiah was a happy, healthy newborn, doted on by his mother, Aneesa, and his three big brothers. But when Jeremiah was around 5 months old, Aneesa noticed changes in her youngest son's development...

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