Patient Support Groups

The Greenwood Genetic Center strives to help patients and their families connect with available resources and other families. We support several local and national parent organizations in numerous ways including coordinating meetings, providing meeting space, speaking, facilitating, sitting on boards, etc. Although there is no cure for most genetic conditions, our goal is to provide families with the education, knowledge, resources, and connections they need to enhance the quality of life for both the patient and the family as a whole.

Meet Makayla Gunn

Meet Makayla Gunn

Makayla was diagnosed with Rett Syndrome in April of 2015 at the age of two.   At about 18 months, we noticed she had started some repetitive hand motions, and her pediatrician was a little concerned that she did not have many words.  She had learned some sign language, and was saying ‘mama’ and ‘dada’, but that was it.  Then she suddenly stopped all of that.  At her 2 year old check-up, the pediatrician referred us to BabyNet, ...

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