Chloe went without a diagnosis for 12 years. Now her family has an answer, Chloe has a zebrafish avatar, and there is hope for a treatment on the horizon!
Rare is beautiful! Artist and GGC mom, Nicole Shannon, found invaluable support from GGC and inspiration in her son’s diagnosis. She created a series of paintings depicting real roses with genetic differences to share her message of beauty and acceptance…
Jeremiah Licorish was born with a rare genetic mitochondrial disorder. Because of his persistent mother and GGC’s ability to expedite his appointment and testing, he was enrolled in a clinical trial and there is hope.
Our daughter, Ryleigh, was diagnosed with a rare chromosomal deletion shortly after she was born in 2010. Since we received her diagnosis, the Greenwood Genetic Center has become part of our family. They made certain that we did not feel alone, and they continue to provide ongoing, compassionate care for our child.
The journey to becoming parents did not start as an easy one for my husband and I. We suffered the heartache of miscarriage and the unimaginable pain of burying our first born child.
Charlie Connor, 13, has been part of the GGC family since he was five days old. Each spring, the Connor family hosts Race the Helix-Upstate in Greenville to share their GGC story and encourage others to support this cause that is so dear to them…