Friends of the Center Newsletter - Summer 2021

05.28.21
Newsletter Cover - Steet, Mackay, Anholt

The latest edition of the Friend of the Center newsletter includes…

  • GGC and Clemson Collaborate on NIH’s First Center of Biomedical Research Excellence in Human Genetics,
  • New folic acid recommendations for women of childbearing age,
  • Rett Center of Excellence: GGC earns re-designation by International Rett Syndrome Foundation,
  • Bake Sales Leading to Breakthroughs: Family-led organizations are key to advancing rare disease research, and much more!

Download the full newsletter here.

Meet Makayla Gunn

Makayla was diagnosed with Rett Syndrome in April of 2015 at the age of two. At about 18 months, we noticed she had started some repetitive hand motions, and her pediatrician was a little concerned that she did not have many words. She had learned some sign language, and was saying ‘mama’ and ‘dada’, but that was it. Then she suddenly stopped all of that. At her 2 year old check-up, the pediatrician referred us to BabyNet, SC’s early interve...

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